Its been a long time since I visted this site, I hope you are all well? I just wanted to share my thoughts and experience so far with my jourmey of being a type 1 diabetic.
In 2006 I was diagnosed with type 1 diabetes. At the age of 36 I found it quite dificult to take in as up until then I did what I wanted in my life food and drink wise. At first I accepted the condition and controlled my levels well. I then found myself getting quite angry with it especially when I experienced hypos and found the whole routine of testing and injecting dreadfull. My anger issues were "WHY ME, what had I done?" My social life changed, the people who loved me annoyed me with "have you tested?", "have you done your injection?", "can you eat that?". I wanted to scream at them to stop fussing and leave me alone when all they were doing was caring and loving me.
I got more and more depressed and spoke to nobody, not even my supportive husband who loves me. Work was unpleasant with me and made me feel being a diabetic was dirty and a obese persons condition. I started to drink alcohol on a daily basis and my social life and my good control suffered.
I left my job and got another job that I really enjoyed but unfortunatley, I was made redundant, this made my depression worse.
I found a new job which to this day I am still employed in.
My experience with my old employer really affected me and I felt very angry and decided to ignore my condition to the point of not testing and I stopped taking my insulin. My drinking got worse and I was pushing the people that loved and cared for me away. I lied when they asked me about my testing and injecting.
My health then started to deteriorate, I went from a weight of 11 stone to less than 8 stone and looked very thin almost anorexic. Again my husband and family and close friends worried and I fobbed them of with more lies.
In May 2010 my health took a very serious dip. I started with an ear infection and went to my GP, the day after I came home from work ill. On the 28th May the day, my husband & i will never forget, my husband found me in our bedroom unconscious and fitting. I was taken by ambulance to Wythenshawe hospital to the intensive care unit. I was in a coma with high suger levels and high keytones. I was in a coma for 10 days with less than a 30% chance of living. I was unable to breath for myself and started with serious complications with my kidneys, I also could have been brain damaged due to lack of oxygen. My husband and immediate family were taken to a relatives room and told to brace themselves over that Bank Holiday weekend that I might not pull through. Ten days later the intensive care doctors decided to try and bring me out of the coma to which they did.
I spent another week in intensive care on a dialysis machine for my kidneys and I had to have physio to gain strengh in my arms and legs and learn to walk again.
This came as a massive shock and wake up call to me. I had been so deceiptfull to my loved ones who were at my bedside day and night throughout this trauma. I can never repay them for there unconditional love and support they gave me and still do tho this day.
Once I was stable I was moved to a ward and was there for another 2 weeks. I was on a strict renal diet to help my kidneys and lots of fluids. I was sent for a scan on my kidneys and was told I might lose my right kidney. I was devastated. I had many visits from the diabetic nurses and doctors who showed me care and support they made me realise that I can live with diabetes, the knowledge and care they gave me was immense.
I then realised after missing my 39th Birthday and knowing I could have died and left behind a heart broken husband, step-daughter, family and friends I needed to face and beat my fears head on. I listened to my diabetic team wrote in my note pad all the things on my mind and questions, no matter how silly they seemed, regarding diabetes, and I craved knowledge and got more determined and stronger.
Due to the dedication of the diabetic team at Wythenshawe the support of my husband, friends and family I have got mentally stronger over my diabetes, that its not my fault or its dirty, that I can have a life and be happy. I left hospital after the renal team confirmed my right kidney was no loner at risk as long as I stopped drinking alcohol and controled my diabetes.
I have spend the last 3 months at home getting better and stronger. I no longer drink due to a support group I attend. I go to all my diabetic and doctor appointments. I test my suger levels 4/5 times per day, I TAKE MY INSULIN.
I am a very luck lady, I could have done some very serious damage to my health, I could have died, lost my kindney or gone blind.
I am dealing now with neuropathy in my feet which my doctor has given me medication to treat it. I want to share my story with you all as its imperative you look after yourself and don't be in denial. When ever you feel down, share your feeling and fears don't hide them away TALK to your team, your partner family and friends, do not let diabetes rule you, it doesn't have to be that way, you can live with it and feel normal again.
Its taken me 4 year to realise this and a near death experience. Dont let this be you. I know have my suger levels under control and I write them down in my home monitoring diary daily, any questions I have I ring my team they are there for you to ask and talk to, its there job to support you. Don't think your pestering them. Use the internet for knowledge stay POSITIVE and HAPPY.
I hopy my story helps, don't ignore the condition look what nearly happened to me. I still have a lot to learn as I might not have been here today to write this.
I am no expert. I hope my story inspires anyone with type 1 or 2 who feels down or frightened to come to terms with diabetes. Feel free to drop me a line if anyone feels down and needs a cheery positive chat. Thats what I want to give to people after my trauma.